Quality of Life and Functional Evaluation Measures for Osteogenesis Imperfecta

  • Verity PaceyEmail author
  • Kathleen Montpetit


Successful surgical outcomes for individuals with OI require a multidisciplinary patient-centered approach. Any correction or alteration to an anatomical deviation present in an individual with OI should aim to improve their overall quality of life and functional performance in areas that they identify to be important and meaningful to their lives. Goal setting prior to surgery, utilizing functional assessment results and careful discussion with patients, can assist surgeons in the clinical decision-making process. Postoperative measurement of functional outcomes is essential to quantify success.


Functional performance Quality of life Goal setting Outcome measures Disability Participation Patient-reported outcomes Patient-centered 


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Copyright information

© Springer Nature Switzerland AG 2020

Authors and Affiliations

  1. 1.Department of Health ProfessionsMacquarie UniversitySydneyAustralia
  2. 2.Shriners Hospital for ChildrenMontrealCanada

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