Personal Reflections on Care for Osteogenesis Imperfecta
- 40 Downloads
I would like to thank Dr. Richard Kruse for giving me an opportunity to share my 30-year experience treating OI children. They (and their families) taught me so much on their disease and on life in general. Many of them became “friends,” and the South American children (where I visited several countries many times) gave me a nickname: Doctor Pancho. There is no better way to express my gratitude to the “OI family” than helping colleagues to improve the care of these bright and charming children.
In the following pages, you will find a few ideas and thoughts regarding OI surgery. These are not recipes to be used, but remarks to keep in mind when you are taking care of such patients.
KeywordsOsteogenesis imperfecta Surgery Long bone rodding Fassier-Duval rod Team approach Intra-op decision-making Personal experience
- 18.Letocha AD, Cintas HL, Troendle JF, Reynolds JC, Cann CE, Chernoff EJ, Hill SC, Gerber LH, Marini JC. Controlled trial of pamidronate in children with types III and IV osteogenesis imperfecta confirms vertebral gains but not short-term functional improvement. J Bone Min Res. 2005;20(6):977–86.CrossRefGoogle Scholar